______________________________________________________________ActiveMSers: Staying active with multiple sclerosis

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TIPS: Exercising with MS

ADVICE: Stretch Often

REVIEW: Pilates

STUDIES: Exercise & MS

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REVIEW: Trekking Poles

TEST: Mini Med Cooler

TEST: Med Cooler

REVIEW: Snow Helmet

REVIEW: Cooling Vest

TEST: Sun-Safe Umbrellas

REVIEW Sun-Safe Jacket

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ActiveMSers is designed to help those with multiple sclerosis stay as active as possible—physically, intellectually, and socially—regardless of your physical limitations.
 
   > Reviews and tests of gear [cooling vests, trekking poles, sun-safe umbrellas, walking sticks, medication coolers, proper clothing/equipment, eyesight aids, and more]
   > Advice on multiple sclerosis exercises [how to postpone dropfoot, reduce spasticity, lessen fatigue, maximize mobility, and more]
   > Tips and tricks on living with MS [how to how to best deal with heat, cope with fatigue, travel afar, look at the brighter side of MS, and more]
   > Building MS awareness and friendships [through our web forum, media interviews, an active blog, and more]

 

Recently Added

+ ActiveMSers FORUM is all new. With the help of volunteers, ActiveMSers has launched an all-new, robust forum. We invite you to particpate with this soft launch (i.e., not widely promoted so we have time to work out kinks). Click here to visit the new forum.

 

+ Life (and Maybe Death) Decisions in the Himalayas. When I went to the Kingdom of Bhutan, I was faced with a difficult quandry: try an insanely tricky route (stairs, no railings, with drops of 1,000 feet) or take a pass on the country's most fabled and holy site. Here's what I decided to do.

 

+ Best exercise tips for multiple sclerosis. After months of research, ActiveMSers has put together a comprehensive list of the best exercise and stretching advice for people with MS. The tips are also in a downloadable Word document so you can print out and save a personal copy (or forward it to friends). This list will be updated on a regular basis. Click here for the top MS exercise tips.

 

+ MS attacks can sneak up on you like a hungry shark. Facing my first major relapse in over two and a half years, I should have been more prepared. But sometimes you just can't prepare for the unpredictability that is multiple sclerosis. Here's how I handled it.

 

+ Hope on the Slopes. ActiveMSer Susannah Wright was diagnosed five years ago with MS at the age of 35. "Within months of my diagnosis, all the outdoor activities I once enjoyed seemed out of reach. Injuries from spastic muscles, tripping and falling had ended my marathon training. Fatigue and dizzy spells made caring for my family's horse ranch exhausting. I had lost the ability to do the things I loved...." And then Susannah discovered snowboarding. Click here for her inspiring story.

 

+ Brooks Donates Quick-Dry Ts. Brooks Sports, the popular running shoe company, has donated a dozen high-quality quick-dry T shirts to ActiveMSers (retailing for $25/each). The olive green Ts received the official ActiveMSers logo imprinted in white on the front of the shirt. Order your limited-edition ActiveMSers Brooks T by clicking here.

 

+ Computer Crash! Little Help? All e-mails from late August to mid December are gone after a serious hard drive crash. If you signed up for the newsletter during this time, you'll need to sign up again. I'm especially missing a nice e-mail from an 18 year old woman who was having some trouble walking. I'm not ignoring you; please write again.

 

+ Dressing up your cane with Kickin' Cane Covers. Darlene was diagnosed with MS in 1995. Since then she has come up with an innovative idea to blend fashion with function: Kickin' Cane Covers. Click here to read her story.

 

+ Today I hit a pedestrian with my truck. He was trying to commit suicide. Stress can ramp up MS symptoms and few things are more stressful than hitting a person while driving 45 mph in a big SUV. Fortunately the suicidal man lived, indeed walked--and then ran--away. Click here to read what happened.

 

+ Test Complete! Walking Aides: What's Best. With reviews of poles from Leki, Black Diamond, and REI, ActiveMSers has finished its testing on hiking and walking poles. The results are telling--poles can be a huge asset (and better than any traditional cane). Here's what to look for in a trekking pole.

 

+ Spelunking challenges for the MSer. Dave revisits a hairy situation 100 feet underground in his blog. How hairy? Think multiple abysses. Then mix in whacky eyesight, fuzzy balance, and the tighest of squeezes: only a scant 10 inches of room! Click here to read!

 

+ What's Better: a Cane or a Staff? ActiveMSers "fell" into the question, pardon the pun, and came up with some practical advice. We've included a section on canes and staffs at the bottom of our trekking pole review. We'll be investigating this topic in more detail in the future.  Here's what we discovered.

 

+ Order Your "MS is BS" T-shirt today! Yes, MS is BS--Multiple Sclerosis is Beatable Someday. And that's why we stay active. Our first ActiveMSers T-shirt was designed by the acclaimed graphic design studio Ripe Inc. (www.ripeinc.com) out of Albuquerque, NM. We have women- and men-specific T-shirts with a full range of sizing. Click here to get your T-shirt now.

 

+ How the "urge" could save lives. Unless you are purchasing a 2008 Infiniti EX35 with Lane Departure Prevention, having an MSer riding shotgun on a road trip is the next best thing when it comes to safety. Yet another one of the 1,001 advantages of having multiple sclerosis. Dave explains why in his blog.

 

+ A Quest to Get Healthy (and Lose 70 lbs). Donna James was diagnosed with multiple sclerosis in 2005. Now she's on a quest to lose 70 lbs (she's lost an incredible 51 lbs so far) to get healthy with MS and raise money for a great cause. Click here to read her story.

 

+ Cooling Vest Buying Guide. Summer can be a brutal time for us MSers--staying cool is a big deal. So ActiveMSers has put together the most comprehensive review and comparison of multiple sclerosis cooling vests (sometimes called ice vests) on the web. Click here for our advice on the best cooling systems on the market today so you can make an educated decision.

 

+ Horseback riding means therapy for one Active MSer. Martha Skye Martin writes of her fondness for horses and how horseback riding has become an essential form of therapy for her multiple sclerosis. Click here to read her story.

 

+ How President Bush and the Iraq War is helping MSers. Don't worry, this MS Musing doesn't turn into a political diatribe or debate about the war. But there is an odd benefit to the whole situation for those with multiple sclerosis. Click here to read.

 

BLOG

+ MS Musings Blog. ActiveMSers has launched an official blog page called MS Musings. Subscribe to the RSS feed, comment on my (mostly) humorous posts, or just read and explore. Click here to visit the blog!

 

+ Front Page Coverage. The Los Alamos Monitor newspaper put ActiveMSers on the cover of their February 27 edition with a great stories about teen MSers learning how to snowboard. Click here to read.

 

+ ActiveMSers is working to start a chapter in New Mexico. Once nonprofit 501(c)(3) accreditation is complete, our first chapter will start rolling, with others around the country waiting in the wings. Be patient! This takes time ... namely, my time!

 

+ Snowboarding with Teen MSers. Even an 18-year-old with balance and fatigue issues gave snowboarding a go, and those actions speak louder than a Guns and Roses concert.

 

+ Giro Omen Helmet: Dave has tried many a snow helmet when snowboarding. But only one has ever truly impressed. And now that he has MS, getting the right helmet is critical. Click here to read our full Giro Omen review.

As seen in the The Wall Street Journal.
(click image to enlarge)


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ActiveMSers T-Shirts

 

Exercise the Brain, Doh!

There are 12 metal spheres. Of the 12, 11 spheres weigh the exact same--one does not. You have a balance. How do you determine which sphere is not alike and figure out whether it is heavier or lighter than the other spheres. The catch: you can only use the balance three times!

* If you think you've solved this conundrum, which is quite hard and a serious challenge, e-mail answers to
dave@activemsers.org . Puzzle solvers get their name in lights!

Puzzle Solver Hall of Fame:
- Dr. Sartorius, Santa Fe, NM
- Dave, Albuquerque, NM


 

BLOG: MS Musings

1001 Advantages of MS! Little did you know that there are so many advantages to having MS. I'm even talking super powers!
On Staying Active Sure, you might be slowing down, but there are myriad ways to stay active (and maybe decrease your fatigue).
On Getting Diagnosed Getting diagnosed with multiple sclerosis sucks. Freaking out? Ha, you are not alone. Welcome to the club.
On Dealing with Symptoms Multiple sclerosis symptoms can be a bear to deal with day to day. Here's how I look at it and cope.
On Giving Yourself a Shot So you have multiple sclerosis and have to give yourself regular injections. Trust me, it ain't that bad.
On Friends How your friends and family handle your MS is a crap shoot. It's also a form of entertainment for the MSer.
On Whatever Sometimes there just isn't a right category. Like when some guy jumps out in front of your SUV trying to commit suicide.

 

GEAR RATINGS

Gustbuster SunBLOK Umbrella: 10.0 

Leki Ultralite Trekking Poles: 9.5

Leki Super Makalu Trekking Poles: 9.5

Polar Bear Medcooler: 9.5

Arctic Heat Cooling Vest: 9.5

Leki Wanderfreund Cane: 9.0

 Giro Omen Snow Helmet: 9.0

Black Diamond Trekking Poles: 8.5 

 Sun Precautions Jacket: 8.0

 REI Summit Trekking Poles: 6.5

Fridge-To-Go Travel Wallet: 0

 Steele Cooling Vest: Testing!

GEAR RATINGS KEY
8.5-10   Excellent! Highly recommended.
6.5-8.0  Very Good. Minor reserervations.
4.0-6.0  Average. May have design flaws.
0.0-3.5  Avoid. Not benefitial to MSers.

 
Click to find a local MS Walk.
 
Programs are available in your area today!
 
Details on the National MS Society's bike tour.

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