Behind the MS Curtain

what’s up with your neurologist  //  the nuts and bolts of clinical trials  //

multiple sclerosis advocacy  //  entering the dens of Big Pharma  //

how to best manage MRIs  //  understanding researchers

emoji key:    😊 mood    ❤️ all time favorite    📚 educational    💪 motivating    💡 bright ideas    🔎 browse    💬 discuss

BLOG

How to Survive 20 MRIs... and a Novel Idea

After 20 MRIs, I’ve learned some valuable lessons that I feel I absolutely must share—lessons that will comfort you on your next tube adventure. And then I opine on whether you really want to know how many brain lesions you have. I argue both sides.

5 min read

😂 📚 💡

REVIEW

Frustrating Neuros, MRI Tips, Finding Clinical Trials

There are many threads on our forum discussing what goes on behind the proverbial MRI curtain. Worried about an upcoming lumbar puncture (spinal tap!!), seeking a clinical trial, or are you shaking
your fist at your neurologist. You have lots of company.

discussion

💬 🔎

ARTICLE

Volunteering for Clinical Trials

Patients who participate in clinical trials tend to fare better than those who don't—whether they receive the treatment or a placebo. Neurology Now, the publication of the American Academy of Neurology, interviewed me about participating in clinical trials. To date I’ve done four.

7 min read

😐 📚

VIDEO

Hope and a Clinical Trial to Halt MS

I went through an experimental NIH-sponsored clinical trial (HALT-MS) for my aggressive multiple sclerosis: a bone marrow stem cell transplant. This video recapping my experience won Fan Favorite at the 2011 Neuro Film Festival.

4:49 min

😊 💪 

DON'T MISS

  • Read this to understand your neurologist's perspective on treatments [BLOG]

  • First-hand experience in a groundbreaking clinical trial [FORUM]

  • Dave recaps his clinical trial experience [VIDEOS]

DIG DEEPER

  • Dave learns of a new test to replace the spinal tap [BLOG]

  • Making best friends at a conference for the world's top health advocates [BLOG]

  • Putting a foot fully in mouth with pharmaceutical execs [BLOG]

  • Inside a health influencer summit [BLOG]

  • An auspicious meeting with fellow famous MS bloggers [BLOG]

  • Harassing the CEOs of Big Pharma, Dave style [BLOG]

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