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+CORONAVIRUS: The Hunker Games—Advice, Levity & Hope. Alrighty, we MSers are in a bit of a sticky situation. With the pandemic of COVID-19, aka the coronavirus, it's getting challenging. As someone at high risk of complications from the virus, you probably feel like you have a bullseye on your forehead. And on your chest. And likely on your butt. (If you are picturing targets on butts and smiling even just a little, perfect, we could use the distraction.) Right now you are being given an avalanche of heavy information--wash your hands, don't touch your eyes-nose-mouth, social distancing!--and I'm not going to pile more on to your concerned emoji face. (The news is doing a fantastic job of that!) Instead I want to remind you that you have the tools to totally handle this. For the duration of the pandamic, ActiveMSers is publishing The Hunker Games, a newsletter chock full of advice, humor, and hope. Non-members can now read each issue below. Or join in the fun and join ActiveMSers to get these light-hearted missives delivered to your e-mail's inbox.
+PODCAST: Life with MS ... according to Dave. I was interviewed by HealtheVoices Blog Talk Radio about life with MS. I'm not sure what I talked about for 45 minutes, but it's getting good reviews and it touches on countless topics. And it might even be funny at times! Give it a listen.
+Playing the Disability Card FTW. I throw caution to the wind so frequently that I’ve practically been forced to learn how to parasail. Allow me to set this stage: I surprised Laura with a pair of tickets to see Sting in concert. An outdoor concert. At a grassy community park. In Taos, New Mexico, population 5,668 people. Number of concert tickets sold to see Sting? 9,000. What could possibly go wrong? NEW BLOG
+PODCAST: Caregivers, Featuring Laura (and Dave!). Guess who is in a podcast with his wife? And guess who gets in trouble? Spiders, staples in skulls, flipping wheelchairs, dishwasher loading and more! Oh, and there is great advice on how to maintain a strong patient / care partner relationship. The podcast is part of Can Do MS's series on caregivers.over a half decade. LISTEN NOW (39:46).
+Video Blog: Thank You, MS!? So there I was, on the toilet, in the middle of Yellowstone National Park, when I had a life-altering experience that would eventually bring me to near tears. And it happened only because I have this damn disease. As much as multiple sclerosis can take away things, it can give you some things back. So I took it and ran/rolled with it! This is my first vlog on adventures with MS, and it includes a couple epic on-location shots of my Yellowstone escapade. Watch the 8-minute video on YouTube.
+Wheeling Through the Hood. What happened when two MSers—one blameless, one not-so-much—unsuspectingly wandered into the middle of one of the most notorious neighborhoods in America? The harrowing (and hilarious) story.... NEW BLOG
+VIDEO: Swinging with MS. Think you are too old, too disabled to swing? Think again! I'm swinging with my niece Lindsey on an accessible wheelchair swing. She didn't think it was scary. I disagreed. Watch the short version on Twitter or on Instagram and the goofy :33 second take on Facebook or me swinging on YouTube. Both are a hoot.
+When a friend with MS dies. On March 7, after 30 years of living with multiple sclerosis, my friend Michael McDaniel passed away at the age of 55. News of anyone being taken with the disease many of us share, especially at such a young age, is disturbing, uncomfortable, frightening. Don’t let it be. NEW BLOG
+NEW BLOG: Throwing Caution to the Wind. You would have been so proud of me. As I was about to thread my off-road wheelchair over an imposing tree root between a gorge OF DEATH and a ravine OF DEATH, I had an epiphany. Maybe it was smarter to turn around. Laura, though, had other ideas. What could possibly go wrong? (Oh, lordy.)
+Get Outside with MS. For When you go outside, the opportunities for adventure increase tenfold. Don't let multiple sclerosis or any disability hold you back. The outdoors beckon. Let's crash that party! NEW VIDEO: https://youtu.be/bYQhrL2XqqY
+Handicap Parking Rules. Who can and can’t (or shouldn’t) park in handicapped spaces is a debate people love to have. Which is why I’ve prepared this trusty handicap parking guide so you and your friends and family don’t look like friggin’ morons.
+Seriously Salty Exercise Trick. When the researchers over at Barts MS Blog approached me to write a guest post about exercise and multiple sclerosis, they likely didn't expect my article, THE REAL, REAL DEAL WITH EXERCISING AND MS, to reach such a salty conclusion. Will it work with you?
+Taking a Step Back. Misfits, a quick heads up. As some may have noticed, I've been on an MS break for a touch for a little R&R and brain vacuuming—I discussed my reasoning here in this personal e-mail to members. As I get back into the swing of things, you'll notice a few changes. But it's not time to panic—I'm not going anywhere.
+Wheelchairs are not (that) Scary. For a couple years, my wheelchair was terrifying. Not to me, mind you. But to my niece Lindsey, who is approaching four, my wheels were a cross between Alien, Pennywise (the clown from It), and that horror movie doll Chucky. A trifecta of terror that could only be made worse with Nickelback songs playing in the background. And then she had an epiphany, as much as a three-and-a-half-year-old can have epiphanies. NEW BLOG
+Confessions of an MS Traveler. I’ve been all over the world with multiple sclerosis—to every continent sans Antarctica, to dozens of countries, to thousands of towns and cities. I always wax poetic about my adventurous travels. And yet as a seasoned MS globetrotter, oh so much seasoning, I have a confession. Before every trip, I am nervous as all get out. NEW BLOG
+VIDEO: Urinary Urgency. Multiple sclerosis and urinary urgency—when you gotta pee now NOW—go hand-in-hand with each other. There are some simple rules that you and your friends and family need to be aware of. Reaching the bathroom, the restroom, or the potty in time doesn't have to be traumatic.
+Begrudgingly Sharing My Kitchen. I’ll always be a chef, just like I’ll always be a snowboarder, a hiker, an explorer. Multiple sclerosis often requires inconvenient—and unwanted—changes, and it is how we cope with these new realities that shapes the future richness in our lives. We can desperately cling to what we had as the rope burns through our hands. Or this. NEW BLOG
+A HIIT for MS. Sarah Conrad, a year after being diagnosed with MS, was on the summit of Kilimanjaro. To her right was Lori Schneider, the first with MS to ever climb Everest. To her left were others coping with diseases, from MS to Parkinson's. The air at 19,341 feet is thin, the brain foggy. But for Sarah, life couldn't have been clearer. She had a plan. Exercise. Relieve stress. Sleep. But first, get down that darn scree field. YOUR STORY
+Shocker! Caregivers are People, Too. Poor Laura. I pride myself on being a bit stubborn with my feisty multiple sclerosis. Often it works. I’ve explored Machu Picchu, scooching down steps on my butt while Demi Moore looked on. I’ve hiked across rickety, bouncy wooden bridges risking life and limb, and survived. I’ve kayaked when I had no business kayaking, driven when I had no business driving, and cycled when I had no business cycling. And then there was the other night. We know how this story ends. Not well. NEW BLOG
+ActiveMSers is on YouTube. After years of talking about doing it, mulling about doing it, and talking about mulling it, I'm doing it. Look for new videos every Wednesday on ActiveMSers' YouTube channel. Unedited, unscripted, unfiltered. And undeniably Dave. God help us all.... First video: patience is rewarded.
+ When MS Gets Heavy. My newest blog post isn't for newbies. Or for those who don’t want to be reminded about what MS can do to our bodies. Or for those who want a typical Dave happy-go-lucky essay that will make you smile and escape and maybe make you laugh out loud. No, it’s not that. But after I read a reply to a post I made on Facebook the other day, what I am writing needs to be said. Sorry.
+Cure Thyself! My newest piece for MultipleSclerosis.net examines the curious trend of complete strangers giving you advice on how to treat your multiple sclerosis. And the new cure sweeping the internet inspires the ultimate challenge. Do you dare take it? ARTICLE
+New Podcast. "The Active MS Dude" is featured in a new podcast as fellow MSer Marie Heron interviews me for Truth Be Told MS. I put it all out there, perhaps a bit too much out there, urg. I sure hope I didn't say anything too crass. (But I probably did.) LISTEN
+Cycling with MS. Cycling with a disease like multiple sclerosis often requires some modification, be it with the style of your riding or with the equipment you need to get out on the bike safely. When I was diagnosed I had to make some tweaks, and then some more tweaks as my disability has progressed. So, from both personal experience and from veteran riders with MS, here’s what you need to know to get out—and stay out—on the bike trail with a disability.
+Ambushing Researchers. I’ve been running ActiveMSers for a dozen years now, and while I’ve been to many MS summits and events, I’d never been to a full-on research conference. That all changed with a recent visit to San Diego where ACTRIMS. It was as advertised: some 1,000 acclaimed MS researchers and clinicians at the top of their game. And a dude named Dave. Oh gawd.
+ Confessions of an HSCT Survivor. If you've ever wondered what it's like to pursue a stem cell transplant (HSCT) for your multiple sclerosis, I am writing a series of articles with the straight, unvarnished scoop for MultipleSclerosis.net. Here's the first piece.
+ Sick, With MS (BLOG). We all hate getting sick. But getting sick with an autoimmune disease is a different beast. This is how I handled it. Better than piss-poor, but definitely not that well. How do you all cope? Any survival tricks? And all I can say is thank god it wasn't the flu.
+ Best MS exercises--UPDATED & EXPANDED for 2018. ActiveMSers has compiled a comprehensive list of the best multiple sclerosis exercises, fitness tips and workout advice based on recommendations from doctors, physical therapists, research studies, professional athletes and personal experience. Read our 100+ tested tips now!
+Change of Plans. There aren’t enough emoticons to convey the feelings that rush you when getting diagnosed with a disease. And the realization that your future plans may have to change.NEW BLOG
+Awkward Introductions and Bro Hugs. When Health Union asked me to write for www.MultipleSclerosis.net, they were probably not expecting my introductory article to include discussions of kitten photos, Cheetos, constipation, sharknadoes, halfwits, and bro hugs. And tucked in there for members of ActiveMSers: an announcement that could shape our futures. Read the column.
+Globe Trotting. Want to travel the world with multiple sclerosis? The National Multiple Sclerosis Society's Momentum Magazine dishes out indispensable, must-read travel advice in their newest Fall 2017 issue.Warning: features that goofy dude from ActiveMSers.
+Banishing Cog Fog. When you finish reading my newest blog post, some of you are really going to hate me. I won’t take it personally. After all, there is some good news with the bad news. Sorta like hearing that you get free hot dogs (yeah!) … but that you have to eat a dozen of them, buns and all, in ten minutes. Long story short, there is mounting evidence that you can reduce MS cog fog. But like wolfing down 12 dogs, it is going to hurt. Bigly. NEW BLOG.
+Stem Cell Transplantation for MS. The other week the gang at Shift.MS (https://shift.ms/) interviewed me on my stem cell transplant experience from 2010. I tried to be honest, and maybe I was a bit too honest. Worth a listen if you are interested in pursuing this treatment.The interview was broken into 7 segments and will be posted over time (about 20 minutes total).
+Stop Comparing. The other day I was out cranking it on the bike trail. It wasn’t an epic ride—the 20 mile mark still manages to elude me—but I put in a solid 13 miles over a couple of hours, decently impressive on an arm trike in 90-degree heat. And then I ran into Beth. You know, that Beth. It’s so tempting to compare yourself with others—the healthy, the diseased, even the “old you.” What folly. NEW BLOG
+Walking with MS. Researchers have stacks of evidence supporting the importance of exercising when you have multiple sclerosis. But you don’t always need to crush it. Sometimes a simple stroll outdoors is the key to refreshing the mind and just getting your body moving. Our resident pro triathlete Kelly Williamson explains.
+Cruising with a Disability. Ships have gotten me and my wife to myriad countries worldwide, and since getting diagnosed with MS in 2006, I’ve cruised with virtually no disability, a modest handicap (requiring forearm crutches), and most recently a wheelchair. I’d like to pass along to you the most essential disability cruising tips that I’ve learned from those and past voyages—6 months at sea combined—exploring the planet’s oceans, seas, and rivers.
+ ActiveMSers Named Best MS Blog of 2017. Last month Healthline announced the top MS blogs of 2017. They picked 22 great MS websites, and 1 site that occasionally boasts, with zero empirical evidence, that it's "the greatest." Oh, the other bloggers are all well aware that I'm full of it. I personally know many of them and have had the privilege to meet more than a few IRL. I recommend checking these inspiring, educational and empowering blogs out!
+5 Ultimate Exercise Hacks for MS. When you exercise daily with multiple sclerosis for over 10 years, you learn a few tricks. This article, which first appeared on Healthline, is a must read and will help you get over even the steepest exercise hump.
+HIIT a Home Run for MS Fatigue. This is potentially big. Really big. Fatigue has always been the most common of multiple sclerosis symptoms and it's typically a crusher. But new research published at the American Academy of Neurology’s 2017 conference in Boston shed light on an exercise routine and its potential benefit to MSers. High-intensity interval training might just be able to beat back MS fatigue (sadly, moderate aerobic exercise had little effect). Maybe we can create our own luck. Share and spread it on Facebook!
+Volunteering for Clinical Trials. Neurology Now, the publication of the American Academy of Neurology and largest Neurology magazine in the world, interviewed yours truly on participating in clinical trials. It's a doozy of a story. You'll even read about my successful quest to use underarm deodorant again.
+All Terrain Wheelchairs Reviewed. ActiveMSers vigorously tested two manual wheelchairs designed to handle the rigors of exploring the outdoors: the Mountain Trike and the GRIT Freedom Chair. The results of our off-road wheelchair test surprised on a number of levels, and not just on the hiking trail. FULL REVIEW.
+Eye Caramba! Warning: When multiple sclerosis optic neuritis strikes, ahem, you never see it coming. (Groan, sorry.) The trick? Willing yourself to cope with uncooperative eyesight. Sometimes that means getting creative with your available resources, like employing a seeing-eye-wife. NEW BLOG.
+ Peru Adventure. Rain, slippery steps, steep precipices, and no bathrooms for 5 hours. What could possibly go wrong during our adventure to Machu Picchu? Well, other than basically everything due to my multiple sclerosis? Sometimes the MS gods are merciful. NEW BLOG.
+Exercise Motivation. Finding the motivation to exercise can be challenging. Turns out it can be challenging for even professional athletes. What to do? Our own resident pro Kelly Williamson has put together an honest and compelling conversation on exercise motivation. Whether you are dealing with a disability or not, Kelly's article will help you find that mojo.
+Failure is an Option. I stared at the kayak. “Oh, hell no,” my brain was telling me. I wasn’t worried about the paddling part—my arms can crank. But the getting in part, the staying upright part, the getting out part, and the whole not drowning part were an issue. My brain was skeptical. My brain, wisely, wanted to bail. And then, on the edge of a tiny lake in Colorado Springs six hours from home, my celebrity doomed me. NEW BLOG
+Breaking Down Barriers: MS Depression. Depression is frightfully common in multiple sclerosis, so much so that about half of those with the disease will have at least one major episode. Worse, this depression is not the simple result of being bummed about having MS or coping with increasing disability. Hardly. Why? As Cathleen Julian explains, MS depression is a different animal. But there is sun behind those clouds.
+How to Survive 20 MRIs. Last month, if my count is correct, I had my 20th MRI. And in those 20 MRIs, I’ve learned some valuable lessons that I feel I absolutely must share—lessons that will comfort you on your next tube adventure. Or lessons that will rattle you to the very core and make you shudder in anticipation of your next trip inside The Tunnel of Doom. You never imagine something is going to go wrong. Until it does. Oh, Geez. NEW BLOG
+Don't Hate Me Because I'm an MS Optimist. The other day, Everyday Health asked me to write a guest column about why I started ActiveMSers. Blog about whatever, they said. So I did. Predictably, I got in mentions of beer and Cheetos, poked fun at an entire swath of MSers (sorry if you are one of them), and liberally used the word bejesus. The craziest part? They edited hardly a word. It’s a fun read and gives you a bit of extra insight into this active MSer. Check it out and if so inspired, leave a comment.
+Epic First Shot Tale. When I gave myself my very first shot over a decade ago, it was an experience that I’ll remember forever. And, unfortunately, so will poor Laura and the 5-foot-nothing Panamanian MS nurse who had to prop up my lifeless body. Oh yeah, I pulled an epic Dave. What did you expect? There's a reason I've waited 10 years to tell this story.
+ Small Victories. The task ahead of me was monumental, some might even say epic. The challenge? Descend a near vertical cliff face through clutching mud in blistering rain, the trail dangerously exposed, before traversing miles of devastatingly slick boulders to reach the final goal of my pilgrimage: the shores of the Pacific ocean. My latest blog on celebrating victories, big and small, with MS.
+ Foiling Setbacks. On the surface, it might seem cavalier for a professional athlete to educate someone with multiple sclerosis about setbacks. What possibly could a world-class triathlete teach a disabled person? A lot, it turns out. Kelly Williamson, a staunch MS advocate and regular contributor to ActiveMSers, shares valuable lessons she’s learned about dealing with setbacks over the years—and why the word CAN is so empowering.
+Stubborn or Stupid? Stubbornness is a trait often revered in those with a disability. That attitude of defiance that we give to our disease so we can power through the tougher times. That ability to raise our middle finger and shout “Take that, MS!” as we soldier on in our quest for normalcy. Alas, there’s a fine line between stubborn and stupid, especially when you have multiple sclerosis—and I’ve got both pretty well covered. Don’t make my mistakes…
+Stealing Back Passions. Multiple sclerosis has a tendency to really, really annoy you. And one of MS’s prime annoyances is its proclivity to steal away passions you enjoy. But I have a simple rule: When multiple sclerosis tries to steal your passions, do everything in your power to steal those passions back. So this past week I raided my disease’s passion chest, and stole back my passion for riding once again. It's the topic of my latest blog.
+MSers in Training. Members of ActiveMSers regularly share their training experiences on the most popular thread on our forum. Ellie, at left, has a motto: MS Sucks, But I Don't Have To. She's a runner, others are cyclists, kayakers, hikers, whatever. Just because you have multiple sclerosis doesn't mean you have to abandon your active pursuits. Join the discussion or read about others staying active with this disease.
+ Cooling Vests Tested & Reviewed. Thirteen cooling vests. Nine manufacturers. Multiple cooling strategies. A battery of tests. Weighted rankings in thirteen categories. At the conclusion of an exhaustive month-long review of cooling vests, ActiveMSers uncovers the players and the also-rans, testing the best cooling vests on the market today. Reviews are updated regularly based on continued testing and user feedback.
+Life's a Beach. When you’ve got an annoyingly pesky disease like multiple sclerosis, some of life’s pleasures become a touch more complicated to enjoy properly. Take, for instance, the beach. Walking aids like canes and forearm crutches suffer in the deep sand. Wheelchairs and walkers? Verboten. Unless, of course, you have a floating wheelchair.
+Perils of Furniture Surfing. If you’ve ever had walking issues due to multiple sclerosis, you are bound to have experience in the sport of surfing, specifically furniture/wall/appliance surfing. One engages in said sport by eschewing practical walking aids—a cane, a walker, forearm crutches, etc.—in favor ricocheting off of solid objects in one’s home. I discovered the hard way, the ONE item your NEVER want to use for support.
+How to Maximize Walking Endurance. PT Herb Karpatkin sees MS as a disease of mobility. "Persons with MS don't complain that their myelin is bothering them, but that they are having trouble walking or balancing." In his first article for ActiveMSers, he provides three essential keys for maximizing walking endurance.
+Best Practices: Coping with MS, 9 Essential Tips. Doggone it, you have multiple sclerosis. I’m with you there. Whether you were just diagnosed, are a veteran with years under your belt, or floating in frustrating limbo waiting for answers, coping with this disease can seem as challenging as bathing 100 dogs. Specifically, mistreated pit bulls. All at once. So to keep you from chasing your own tail searching for answers or from barking up the wrong tree when seeking advice, I’ve dog-eared for you my favorite tips for managing your MS.
+BLOG: Running with the Bulls. Get exclusive backstage access to architectural masterpieces. Check. Ride in the royal elevator. Check. Get trapped in a bathroom. Uh, check. My recent Spain odyssey was epic in more ways than one. When you have multiple sclerosis, adapting is the name of the game or you'll get trampled.
+On Your Left. For the first time in more than half a decade, I spent the afternoon on the bike trail. And admittedly it was thrilling to take in all the scenery that was passing me by... uh, quite literally passing me by. I was passed by teams of spandex-clad cyclists with matching road bikes and many, many others. "On your left" was the repeated refrain. And I did not care. I finally was cycling again. Read my latest blog here about the experience, complete with nearly running into a pack of Olympians. Seriously.
+ActiveMSers featured in New York Times. My five year dispute with my insurance company—the one where they refused to cover a life-saving stem cell transplant for my aggressive multiple sclerosis after all other treatments had failed—is finally resolved, and in dramatic fashion. My story is in the Sunday August 3 print edition of the New York Times, putting this ground-breaking treatment, questionable health insurance tactics, and yours truly (and ActiveMSers) on the world stage. Read the Haggler by David Segal now to see how his biggest case ever reached its conclusion. For more details on the case, see Operation Overturn.
+ ActiveMSers Founder Featured on Cover of Momentum. It was an honor to be featured on the cover of the Summer 2014 issue of Momentum, the National Multiple Sclerosis Society's national magazine. The magazine interviewed me for a series of articles about staying cool and managing heat, one of my specialties at ActiveMSers. Read the articles here.
+ Freedom on a Trike. The moment I start cranking, feelings of liberation, glee, freedom overpowered my multiple sclerosis. MS, what MS? And then in the next moment, feelings of terror and dread took over. My first in-depth experience with adult tricycles was entertaining ... and educational. My latest blog opines on recumbent trikes, both hand and foot powered.
+ Cooling Vest Buying Guide. Summer can be a brutal time for us MSers--staying cool is a big deal. So ActiveMSers has put together the most comprehensive review and comparison of multiple sclerosis cooling vests (sometimes called ice vests) on the web. Click here for our advice on the best cooling systems on the market today so you can make an educated decision. Newly updated!
+ Avonex and Eight Wheels. What does one do when one gets diagnosed with MS? Likely reexamine life’s priorities and, perhaps, stretch boundaries. Certainly Elys Bank never thought she would try out for roller derby. Until she did.
+ Staying Fit on the Water: Kayaking with MS. Suzanne Powell was used to 9-hour kayaking day trips. But when she was diagnosed with MS just weeks after her 50th birthday, she didn't even know if she would still be able to kayak at all. In her original 2008 article for ActiveMSers she outlined detailed plans that would keep her kayaking, her obsession. In her 2014 update, she reports that those plans have only gathered dust. Here's her story.
+ Timing is Everything: Three Toilet Tales. My latest blog is a trio of humorous bathroom situations I stumbled into on a recent visit to Northern Europe. WARNING: Do not read with a full bladder, because you will laugh so hard, well, you can put two and two together. If you need to smile today.
+ Skiing with MS... and an Attitude. Veronica of Tarrytown, NY, thought her skiing days were over after her multiple sclerosis diagnosis in 2004. But boy was she wrong. Six years later, at the age of 58, Veronica was inspired to take back her winters and try adaptive skiing. She hasn’t looked back since. Get inspired.
+ Managing MS Endurance. On a recent weekend while hiking in Sedona, I walked more in a single day than I had since 2009--2.9 miles, over 6,200 gimpy steps. Of course I realize this might not sound like much, especially if you do the math. I mean, it would take me nine full record-setting days to accomplish a single marathon, which apparently any remotely athletic Kenyan can run in under three hours. But with multiple sclerosis doing a number on my legs, it’s cause for a minor celebration. How did I go so far? By learning to smartly manage my endurance. Here’s how I did it.
+ BLOG: Advantages of MS #832, Coyote Safety. As my wife and I were about to start a fall hike in the Rio Grande bosque, a beautiful forested ribbon of gold every October, we took pause at a posted sign at the trailhead. The warning was ominous. “Coyotes live here!” The exclamation points were numerous. “Be aware!” How MS could save your life on a casual fall hike.
+ Best MS Toilet Tips. Why are toilet tips so important to those with multiple sclerosis? Frustratingly, bathroom issues and MS often go hand-in-hand, and if you plan to stay active with this disease, odds are you are going to have to deal at some point with potty problems, from gotta-go-NOW urgency to why-the-hell-can’t-I-go constipation. ActiveMSers has put together more than two dozen of the best tips to help cope with these annoying symptoms.
+ "At Least You Don't Have Cancer." People say lots of silly things when they hear you have multiple sclerosis. “I have a couple friends with MS, Stacey and Madison. And Madison is doing great!” I know this may come as a shock, but even with MS I still have the powers of deductive reasoning. What the hell happened to Stacey? In this blog post I discuss my favorite responses and fellow MSers chime in with their doozies.
+Your Best Weapon. When you’ve got a disease like MS, you’ve got to make some adjustments, some little and some big, there’s just no getting around it. But there is one adjustment that trumps them all. One adjustment you have to make if you are going to have any chance at getting the upper hand on your multiple sclerosis. And it’s the topic of my inspirational essay, which was recently featured on the popular websites InspireMeToday and Care2.com.
+ MS exercise studies. ActiveMSers has collected the abstracts of more than 40 exercise-related multiple sclerosis studies. Does exercise actually reduce fatigue? Can cardio work improve memory dramatically? Do video games boost balance? Can strengthening leg muscles help you walk better? Could exercise potentially have a neuroprotective effect? Researchers have found that the answers are a resounding yes, yes, yes, yes, and yes! Read for yourself.
+ BLOG: MS's Mountains and Molehills. There will always be mountains with multiple sclerosis. And, fortunately, molehills. You might not conquer them all, but you’ll never ever reach a summit if you never ever try. For the first time in four years I went snowboarding.And it was unforgettable.
+ Hamstrung with Hamstrings?Gymnasts grab their toes. Yogi masters grab their toes. Chinese acrobats who specialize in contortionism grab their toes. People with MS don’t grab their toes. I have the flexibility of Melba toast. Reaching my kneecaps and maybe—maybe—touching my shins (if I cheated and bent my knees) was my elasticity Everest.Suddenly that all changed, and you can do it, too. And it might be the smartest thing you can do to fight spasticity.
+ BLOG: Hating Snakes and Bridging Fears. Indiana Jones and I have a lot in common. We hate snakes. We often travel to exotic locales. And we somehow get ourselves into sketchy situations that inevitably involve rickety wooden bridges and potentially calamitous falls. One would think I would avoid said bridges with my current walking challenges. Yes, one would think.
+ YOUR STORIES: CrossFit Fortitude. The Discovery Health Channel calls CrossFit “… a well-rounded and very efficient way to achieve a higher level of fitness … that does not need a whole lot of fancy equipment, but does offer a nice variety to keep the interest level up and provide the challenge needed to keep the exercise fun.” Others call the intense program Jehovah's Fitness, Torture Chamber, or a cult. Erin Mulvany, diagnosed with multiple sclerosis in 2004,has heard it all.
+ Bending the Spoon Theory. There’s a popular description of having a disability that makes its way eventually onto every multiple sclerosis discussion board on the internet: the Spoon Theory, Christine Miserandino’s personal story and analogy of what it is like to live with a disease (lupus in her case). Indeed, it is an eloquently simple description of what life often is like with multiple sclerosis and its ubiquitous fatigue. In my newest blog I discuss how we can all bend her theory.
+ Updated Travel Tips. Each time I jet off—last month it was to France—I gather a few extra nuggets of travel advice, either from personal experience or from chatting with fellow multiple sclerosis travelers. Click here to read my newest additions so you can ensure your next holiday is a "towering" success, pardon the pun.
+ Yoga for MS deconstructed. Yoga has long been touted for both its physical and mental benefits for those with multiple sclerosis. But yoga also conjures fear in us MSers who’ve never done the ancient Indian discipline. ActiveMSers breaks down the mystery of yoga and explains why it is so helpful in MS.
+ Don't Set the Puppy on Fire. We’ve all been there—getting off the couch to wander into the kitchen to grab that thing. Or do that thing. Or find that thing. Or put away that thing. Wait, now why the hell did I go into the kitchen again? Cognitive issues with MS are maddening. Dave discusses the challenges in his blog.
+ Destination: Everest Base Camp. When Gary Pinder lost almost all function on his left side in 2007 to an aggressive relapse that put him into the hospital, he vowed to press forward. In 2010 he hiked the fabled Inca Trail. In 2011 he went bigger: Everest Base Camp.
+ Going Drug Free: The Flawed Arguments. There are a number of reasons not to take disease modifying drugs for your multiple sclerosis. And by many, I mean three. And one relates to a kitchen sink (with garbage disposal, not shown). Before you go drug free, read my blog.
+ Quest for a Black Belt. Sara Gadson was diagnosed six months after she started training in the martial arts style of Shorin Ryu Shorinkan Okinawan Karatedo, a form of karate. She has a kimochi all her own.
+ Switching Meds? Beware the Piranha. As I sat in a tippy wooden dory deep in the Amazon rainforest—dripping wet with sweat, DEET, and the remnants of a sudden afternoon shower—I couldn’t help but wonder about the wisdom of my decision to spend an afternoon fishing. Specifically, fishing for piranha.
+ Your Stories: Cycling Adventures & the SAG Wagon.Intrepid cyclist and active MSer AMF Adventures has put together an engaging tale of his BikeMS ride from 2008. It’s a story that includes raw heinies, a screaming knee, and unbelievable willpower. Way to go, AMF! We invite you to submit your own story: email@example.com. It’s one of the most popular features on our website and we are always seeking inspiring articles.
+ From Barely Walking to Ironman! When Mark Van Meter was diagnosed at age 20 with multiple sclerosis, he thought he wouldn't make it to age 40. He could barely walk, much less write his own name. Today, at age 47, he is working at qualifying for the most grueling Ironman in the world. Read his courageous story.
+ Your Stories: Ashlea Deahl Keeps Moving. "Forget about what you can’t do – do whatever you can to keep moving." So says a defiant Ashlea Deahl, the editor of Phoenix Magazine who was diagnosed with multiple sclerosis in 2001 at the age of 22. Her motivating story about controlling her MS, fighting through fatigue, and "running" her first marathon should be a mandatory read for MSers.
+ Seize the Moment! Mild or Spicy. Multiple sclerosis is an unpredictable beast that can be as mild as a green pepper or as spicy as a Naga Jolokia, the world's hottest chile pepper. So when faced with an opportunity, well, read what I did by clicking here.
+ Life (and Maybe Death) Decisions in the Himalayas. When I went to the Kingdom of Bhutan, I was faced with a difficult quandary: try an insanely tricky route (stairs, no railings, with drops of 1,000 feet) or take a pass on the country's most fabled and holy site. Here's what I decided to do.
+ MS attacks can sneak up on you like a hungry shark. Facing my first major relapse in over two and a half years, I should have been more prepared. But sometimes you just can't prepare for the unpredictability that is multiple sclerosis. Here's how I handled it.
+ Hope on the Slopes. ActiveMSer Susannah Wright was diagnosed five years ago with MS at the age of 35. "Within months of my diagnosis, all the outdoor activities I once enjoyed seemed out of reach. Injuries from spastic muscles, tripping and falling had ended my marathon training. Fatigue and dizzy spells made caring for my family's horse ranch exhausting. I had lost the ability to do the things I loved...." And then Susannah discovered snowboarding. Click here for her inspiring story.
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Instagram Escape Where can you go with multiple sclerosis? After crisscrossing the globe with this disease—traveling to six continents, 30+ countries and countless towns and cities around the world—I've discovered you can go virtually anywhere. My fave travel pics are on Instagram. Escape with me!
ActiveMSers Forums With thousands of members and posts—and over 5 million views—the ActiveMSers' discussion forum is a hub for members and the general MS public to read and chat about our shared disease, from trading tricks when exercising to debating the latest research. Join the discussion or just browse anonymously.
ActiveMSers Apparel If you've absolutely got to show your ActiveMSers' pride, we offer MS is BS (multiple sclerosis is beatable someday) 100% natural cotton T-shirts for men and women. Our cool logo is featured on the front. A few dollars from every sale helps maintain this website.
100% Cotton MS is BS T-Shirt, $19.75 Women's and men's cuts available.
Dave's ActiveMSers Blog For the more personal (and often humerous) side of multiple sclerosis, from what it feels like to get diagnosed to challenges of going to the bathroom, the blog will have you nodding your head and laughing. I call our blog an uncommonly clever, insightful, and funny voice of reason in all this multiple sclerosis silliness.